The Beginning...

This is the beginning story of our journey with Spina Bifida and our son Jonah...

Doctors, nurses, specialists...they all meant the same thing to us at this point. But way back then I remember sitting in that very first Doctors office with all the wonderful thoughts running through my head that every first time mother or parent must have. Will it be a girl or a boy? Will I be a good mom? Is he/she going to look like me? I never thought that I would have much more important things to think about over the next nine months. The doctor had asked many questions but the one that stuck out to me the most is if I would like to do any testing for birth defects and my answer was very straight forward, "No! No matter what could happen this is my baby and nothing would change that." God must have decided to test my faith because nine weeks later I am sitting in a totally different doctors office receiving the news that my son has "myelomeningocele" a type of Spina Bifida. Those dreaded words..."There's a defect" were ringing in my ears and my eyes were filling with tears as I sat there in shock. I finally got the strength to mouth to Zach "thats BAD" and let him take it from there. We left the office will little information on what the future held for our son and walked out to our pickup. I dialed the number to my moms house and she answered happily, awaiting to know the sex of her newest grandbaby little did she know that wasn't the biggest news we recieved. I told her it was a boy and handed the phone to Zach as I turned into a mess of tears. We spent a few moments calling the closests family members and letting them know the news. It felt hard to face the world but we had plans to go baby shopping after the appointment and I was determined to do so despite all the hard news. That day marked the beginning of the rest of our lives. Doctors appointments, specialists, Spina Bifida Clinic, boots, casts, surgeries and more...